Cleft Club Radio - podcast for cleft lip & palate community

Thursday, July 21, 2005

Cleft Club Radio - Episode 2 - new subscription feed, world news, being a parent who was born cleft, Harry Potter, and site updates

Download show here

Welcome to Cleft Club Radio
Today is July 21, 2005
I’m your host Kim Andrews

(theme song)

Welcome back to the second episode of CCR. Thanks for the positive comments about the first show!

- We now have a link you can use to subscribe with or listen to on the web. The address is http://feeds.feedburner.com/CleftClubRadio . Can still download shows there as well as the downloads section at cleftclub.com

- Put up shownotes for the first show! Click here

- Definition: Shownotes are an outline of what happens in each episode.

- 31 subscribers! Whoa! It was 16 when I started to get the show read on Wednesday and doubles in a few hours. Cool! Welcome to all the new subscribers!

- Wrote up a FAQ on CCR. Can be found in the FAQ section.

- Got a number of people wanting to subscribe to the mailing lists. Excellent! A few didn’t give reasons to why. Must give reason why you want to join, helps keep out spammers and email harvesting bots that collect emails for spammers.

News on the world

- From the New Straits Times
"99pc success rate in cleft lip, palate operations" story link
director of a cleft clinic Hospital Universiti Sains Malaysia reports that they have been successful in treating patients at a young age and also have them go through rehabilitation and therapy.

- From Canada.com
Formerly conjoined twins headed home story link
conjoined twins who were also born with a cleft lip and palate from Zimbabwe Africa were flown in to Canada. Delivered at a salvation army hospital, operated on at the Hospital for Sick Children in Toronto
sent home on Wed. Keep beating the odds kids! Best of luck to the family!

- Channel 13, WHAM in Rochester NY
"Operation Smile Has No Borders" story link
19 year old Mungamba Vunda from the African Congo has an operation done on his lip by Dr. Lawrence Kurtzman through Operation Smile (www.operationsmile.com) .
includes a video link

- Black Mountain News from Black Mountain, NC
“Shriners help local child overcome facial disfigurement” story link
story of the Reese family, Noah, 8 who was born with a cleft lip and palate and was operated on by both operation Smile and the Shriner Hospital in Boston
father David, also born with a cleft and shares his fears about passing it on.

Another interview with my daughter Kristi

Commentary - Being a parent who was born cleft and why that didn't bother me
Commentary #2 - Harry Potter controversy over the "H" word (harelip) in "Chamber of Secrets" (will link to my article later)

New additions to the Photo Gallery
- Nursey007's daughter Rachel

Ending

[Remember that I am not a medical professional so anything you hear on Cleft Club Radio is for informational purposes only! Thanks! :)]

Thursday, July 14, 2005

First podcast! Cleft Club Radio - July 15, 2005

Here's the first podcast for Cleft Club Radio!

Click here to download and listen

Running Time: 17:50

Here's what's talked about:

Recorded July 15, 2005

- Intro to the show (you can hear my daughter in the background at times)

- short intro about who I am

- interview with my 6 year old daughter Kristina who wanted to say hello (lol)

- this show is just for informational use, not to be taken as medical advice. Please consult your doctor/cleft team.

- I talk about what "cleft", "cleft lip", and "cleft palate" means, and the difference between unilateral and bilateral cleft lips and palates.

- description of CleftClub.com. Archives of the old Cleft Club at Yahoo Clubs, you can visit here. To see what is looks like now visit here (no longer posted to, but you can read the posts)

- Photo Gallery and how to add your pictures

- the Personal Experience Database and how to have your personal story read on a future show.

- how to join the mailing lists (main group, teens, adults, parents) of the club.

- send in news and events you want to share on the air! Email me at calvero@cleftclub.org

The rockin' theme song is "Almost Everything" by Uma Floresta :).

Kim